UGH!!

I don't even know where exactly to begin. Yesterday seemed to be so stressful. We found out that Sean and Kadian both may have to have surgery. Sean was sitting in the chair Saturday and went to stand up and his ankle gave out. He thought it just needed to be popped. He was limping around till Monday when he went to the DRs. They told him that he has bone fragments and bone spurs. I guess the radiologist has to read the xray and they will determine from there what he needs to do. This is the foot he broke when we lived here before. The doctor then said he may need surgery but opted not to because he was on sea duty. They should have just fixed it then. This whole time he has issued with it but was told it would get better.
I took Kadian back to the Urologist yesterday. The good news is they have the equipment for the Biofeedback so as soon as they get it up and running she will be the first one to use it. The bad news is she is very constipated(to the point of being impacted) even after being on Miralax twice a day along with Ducolax. She will be on a crazy medicine schedule for the next couple of days that may make her very miserable..that's even if she tolerates the first medicine and I can find the right dosage(as of yesterday none of the pharmacy's around here have it.) She is on antibiotics till she see's the actual Urologist(she see's a NP who specializes in helping kids with incontinence). The Urologist will determine if she needs to have the more complicated surgery to fix her Ureters. She is definitely still having urine reflux so the deflux surgery has definitely failed. The NP said her main concern right now is to prevent the 105 fevers. They can cause damage to her kidneys. She also agreed that Lauren's geneticist should do LCHAD sick labs on Kadian during the UTIs. She said it is not common for UTIs to cause leg pains. She has only experienced normal UTI symptoms a couple times. She is kind of baffled by that. She said a high fever could cause muscle pain but there have been times when Kadian has had a UTI without the high fever. During the low grade fevers, she has complained that she can't walk. Hopefully he will be willing to look into it. We won't find out till August 10th if she will need the surgery.